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OOPS we’ve been a little busy!!!!

First things first…. MARY ELIZABETH IS 5 YEARS OLD!!!!!!!!!!!! Yes, that’s right we celebrated Mary Elizabeth’s FIFTH birthday
recently, her birthday was May 20th but she had a few different
parties, with family, friends of the family and then her school
friends. A bit much but much deserved- plus I have to say 5 is a
special birthday dontcha think?

So let’s catch up on what’s going on with her…. Mary Elizabeth had another surgery on April 8th in which they did a scope, some lasering and a steroid injection to the top of her airway. The top of her airway has a bit of scar tissue there which makes the entrance to her airway a bit narrow. They are working towards making this more open – and she will have another scope to check things out on June 14th.
We just visited Dr. Waner’s office on May 11th, which is when we scheduled that next procedure and also discussed what else she’d need to be done. They will eventually do some more debulking on the chin and also she will see another jaw specialist who is coming in November I believe. They showed us a model of her jaw that they had made in the past. I know in the past they said no work on the jaw before a certain age, but we will see this specialist as well who has done work on children like her and see what input he has when he comes.

I suppose we will know more after June 14th.

As for the last post where we were talking about her missing teeth etc. One more came out after that, on it’s own I suppose… not typical though, like not a loose tooth etc, just from her issues. That was on the lower left side. But the good thing is – we are finally seeing one of her adult teeth coming through… her two front bottom teeth are coming in, the left one is half out, and you can see the right one is right under the gum about to come through. So we pray that the rest come out soon too. And we are working hard to keep them strong and healthy as always. She has an appointment with the orthodontist on Thursday (May 27th) to discuss early intervention with her teeth, not sure if anything will be happening right now- but we’ll get an idea of what plans will be made as she grows.

As for the rest of us… we’re all doing well. Drew continues to be a little handful (though an adorable one) – he’s getting older and understanding more so that has helped. He shows interest in pottying but doesn’t quite “get” the sensation of actually going. We haven’t really worked with him on it- but when he asks to go potty we certainly let him pretend to go or whatever. But this summer when we’re home more and not running ME out to school and speech therapy etc… we’ll work on getting him potty trained in hopes of him starting preschool in the fall. In the meantime he’s going on lots of playdates and having fun with his big sister at home.
Lately, Drew & Mary Elizabeth’s big thing is reenacting scenes from movies. For instance, in Annie- he plays the doggy “Sandy” and ME will be Annie, and they do some of the scenes where she’s calling him. Then in Snow White he’ll be the man that tells Snow White to run far away, and off goes ME running… he’ll also be the prince in the end and give ME a kiss to wake her up. They are learning more scenes as they go. I wonder if I should be putting them in acting classes??? LOL!

We will keep you all posted as the appointments come and things are happening around here.