www.BabyRaia.com

So today went a little different than anticipated…. but it still went well.

Mary Elizabeth was sick a week or two ago. That ended and then one day out of no where she threw up like 5 days after feeling better. She seemed and felt fine… so I thought maybe a super-fast stomach bug or something. Who knows.

Then this morning, the day she was due to go in the OR she gets up at 4:45am and throws up. Oh Lord I thought- we are not going to make it down there. But I realize it’s not throw up- it’s some brown old-ish blood and saliva mixed. That’s when the bell rang. I thought back to a week prior when I noticed some brown spots on her pillow case. This happens sometimes when the tiny vesicles under her tongue start growing again… meaning she’ll need lasering. (If you don’t remember her LM can cause these tiny vesicles or “bubbles” to grow in her mouth area from time to time, lasering does the trick and sometimes can last year(s) or sometimes less – it’s random). Well while I knew she’d need lasering soon, I realized she must be swallowing some of that blood and it sitting in her stomach makes her nauseous and thus she is prone to throwing up. Because in addition to the things mentioned, I also noticed a bit of brown discharge from her trach hole, so it was definitely getting back in her throat.

We left as planned, but I called her Dr. on the way down. (Dr. Waner’s surgical assistant Dr. O did the procedure this time). She agreed on continuing as planned and said she’d do some lasering while she was in there. She’d also scope her to be sure it was only in the front and not in the back of her tongue or in her airway. If it were, she’d wait to close the trach hole.

Well we got to the hospital late due to an accident on the highway we took down and then other rush hour traffic. That put us behind as they had to switch cases and put us in later. And the surgery ended up being a bit more involved. You see, we were just supposed to be there to get stitches and some baby teeth removed (we went to the dentist and she needed some of the teeth extracted so he set up to go into the OR and do that while she was under). Instead, we had that done, plus a scope of her airway and back of her throat and then lasering to the floor of mouth, inner lip area and base of tongue. So the surgery was a few hours instead of much, much less.

When I saw her in the recovery room, as always she was sleepy and slept long!!! She never wants to wake up, but I woke her up as I usually do. She seemed to do well. But it took a while to get her motivated to even leave! So we were there for a while.

Of course, the night wasn’t without hassle. They parking garage guys messed things up and that took a while, traffic on the way home was less than pleasant, and the pharmacy we went to (not our usual one since that was closed) took forever and then messed up the insurance stuff. So after leaving at 6:30am in the morning… we didn’t end up home until 8pm!!! We’re exhausted! Although…. you could only tell that Mommy was… because ME played some pretty active video games with daddy at home for a little bit before bed!

So as you can see- she really did well. The lasering went fine and she is used to having that done, doesn’t really call for any recuperation. She isn’t bothered by the teeth missing (they were pretty much half gone anyway) and she’s excited because her dentist actually called the tooth fairy to tell her he has the teeth and she should leave something under ME’s pillow tonight! Exciting!!! And she is very happy that her trach hole is closed.

She is now asleep and we are watching her oxygen levels which remain good! Thank the Lord!

She goes back in about a week to have the stitches removed. And then we’ll have a pretty clear neck!! YAY!! Thanks everyone for the prayers 🙂