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So what prompted me to write this update was the fact that Mary Elizabeth was in the newspaper today! My cousin, a wonderful person and friend, Michele Andersen is a freelance writer and felt compelled to write a story on our journey. She submitted it to the local newspaper (Poughkeepsie Journal) to see if they would pick it up and they sure did!!

Here is a link to the article: http://www.poughkeepsiejournal.com/article/20110717/NEWS06/107170329/Parents-daughter-lymphatic-malformation-find-treatment-support

What a great way to spread the word/bring awareness to her condition!

In other (smaller) news…  after Mary Elizabeth’s kindergarten graduation which was a beautiful little ceremony…. we kicked off summer and since then – we’ve been having a GREAT time!! LOTS of swimming since Mary Elizabeth is now trach-free. We are just pool-hopping all over the place and loving every minute of it. Other than that we’re enjoying time with friends and family – the people that are closest to us!

The kids also enjoyed going to VBS (Vacation Bible School) at our church for a week of fun activities, songs, and fellowship with their friends! And we have a nice small vacation planned coming up- Sesame Place for 2 days with friends and then our yearly family vacation to the beach!

After that though, she is due to have surgery on August 4th. We will be sure to update all of you with what goes on. But it’s not a small procedure by any means so definitely keep her in your prayers and thoughts!

Thanks! 🙂